In Northern Ireland, a 2025 survey has reported that over half (51%) of people feel disconnected from health and social care services and care, with a similar proportion (48%) believing that no action they took would make a difference to pressures on the health service there.3 In response, as part of the Health and Social Care Reset Plan, the NI Executive has committed to “a renewed and concerted focus on prevention, health literacy, and empowering people to manage their own health; by beginning a dialogue with them about what health means to them and how they can help us to help them when they most need us”.4
As a first step towards this commitment, a roundtable discussion was hosted at Hillsborough Castle in September 2025, where senior health and care leaders, thought leaders, representatives from local government, the Community and Voluntary sector and leaders from wider Northern Ireland Government departments came together to explore the potential collaborative advantage of a new relationship with the public in delivering public sector goals.
The outcomes of that roundtable were captured in a report, People to Partners: Developing a Unique Approach for Northern Ireland.5 Recognising citizens as active partners in shaping health and social care, the report highlights the need for cultural and systemic change, stronger collaboration across government, and greater investment in co-production and community capacity. Central to its recommendations is the creation of a cross-government strategic framework to align policy, resources, and leadership around partnership with the public. By embedding this approach at every level, the report sets out a vision for a health and social care system built with people, not simply for them, moving from discussion to coordinated, cross-government action that places people at the heart of decision-making.
Ireland, meanwhile, has seen a significant deepening of its commitment to patient and public partnership within the health system over the last decade. The establishment of the HSE’s National Patient and Service User Forum in 2015 provided, for the first time, a national structure through which patients, carers and service-user advocates could contribute directly to service planning and policy development. This was reinforced with publication of the HSE Patient and Partnership Strategy, 2019-2023 and the publication of the Better Together Health Services Patient Engagement Roadmap in 2022, a system-wide framework designed to move engagement beyond consultation towards genuine co-design and shared decision-making.
Institutionally, the infrastructure to support this shift has continued to mature. Partnership is now increasingly recognised as a standard, built-in component of all major service development initiatives, rather than as an ad hoc activity. Patient and Public Partners have played a significant role in shaping the HSE Centre and Regional design under the Sláintecare programme, and most major programmes of work — including the Digital for Care Programme — now include patient and public representation on their steering and working groups.
The annual Patient and Public Partnership Conference has become a well-established event over the past three years, attracting more than 400 in-person participants and over 400 online attendees. A National Office for Patient and Service User Engagement has been established to coordinate policy, build capacity within services, and support consistent standards of partnership across the HSE, while a National Partnership Lead has recently been recruited and tasked with ensuring that the Regional and National Partnership Councils are implemented and run to a high standard.
At regional level, each of the six new Health Regions has appointed a dedicated, full-time Public Engagement Lead. These roles are intended to embed partnership in everyday practice - ensuring that local priorities, service improvements and reform initiatives are shaped collaboratively with patients, families and communities. Collectively, these developments reflect a deliberate evolution from ad-hoc engagement to a more structured, strategic and resourced approach to public partnership across the Irish health service.
Conclusion
In summary, redefining the social contract for healthcare is essential for creating systems that genuinely meet the needs of our public. By viewing individuals as active partners rather than passive recipients or consumers of care, we can foster a collaborative approach that emphasises shared responsibility and community strength. Trust is both the foundation and the outcome of building a system that does things with people: citizens must trust that their voices matter, and professionals and institutions must trust in the public’s capacity to shape solutions. Only through that reciprocal trust can we create a sustainable, responsive, and truly people-centred system. While challenges exist, prioritising genuine engagement and co-production is essential for achieving better outcomes and creating a sustainable healthcare future.